Being married often means watching films that you both agree on.
<p>When my <a href="https://medium.com/@jeanswidler/a-slowly-unfolding-catastrophe-c2ff784167d7" rel="noopener">mother died of ALS</a> (following her mother and grandfather and preceding her sister in passing from the disease) I learned of the genetic cause of this in our family. Along with the name of a gene that seemed quite odd and unfinished (a jumble of letters and numbers) I discovered its pleiotropic effect with a shared risk of a disease I had not heard of <a href="https://www.mayoclinic.org/diseases-conditions/frontotemporal-dementia/symptoms-causes/syc-20354737" rel="noopener ugc nofollow" target="_blank">Frontal Temporal Dementia</a> or FTD. In brief examination of this I discovered horror — individuals who were no longer the same person they were most of their lives and in later stages often catatonic and a burden to their families. When I informed my broader family on the genetic finding in what’s known in genetic counselling as a “family letter” I could not bear to mention the connection to FTD- surely if they investigated more they would find it.</p>
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