Variant Bio???s Benefit-Sharing Model Featured in Genome Research

Then along came Variant Bio, whose mission it is “to leverage the power of human genetic diversity to develop life-saving therapies.” As far as I could tell, it was — and remains to this day — a real outlier in the biopharma world. From the moment it was founded, leaders at Variant Bio set about figuring out how to integrate community-engaged research and benefit-sharing policies into their business model. They formed an ethics advisory board before even a scientific advisory board, and they hired anthropologists right out of the gate. Taking as guidepost the Indigenous data sovereignty movement, Variant Bio built out a unique approach to benefit sharing that aims to increase equity in genomics, and to prioritize the perspectives of the communities who participate in research with us.

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