Tag: Rare

Finding “Missing” Rare Birds

I’m not super-well qualified to write this blog. As I have discussed before, I’m not especially keen on UK birding’s disproportionate focus on rarities and twitching. I’m also in no position to hold forth with advice on finding rare birds. In my 30+ year birding career, ...

Rare Parrots

Arrays of pearl millets lined up the fields, gently swaying in the intermittent dashes of breeze. Pearl millet, also known as Bajra locally, is a superfood. The fields were ripe and ready for harvest, but the good samaritan who owned the farm didn’t harvest the fields. He leaves the fi...

The Supreme Court’s Decision: Impact on the Rare Genetic Disease Community

Iam the father of a child suffering from a severe degenerative genetic disease; a disease which carries a constellation of medical complexities, a terrifying disease with no treatment or cure. I am so scared. We worry about every medical piece of her genetic puzzle, each of which catastrophically...

Rare genetic disease can strike your family too

When our son was diagnosed in early 2022 with Prader-Willi syndrome (PWS), a rare and serious genetic disease with a frightening prognosis and no cure, my family’s life was immediately turned upside down. Part of the reason the diagnosis was so devastating was that it came completely out of no...