Book Review: We the Scientists
<p>Addison and Cassidy, the twin daughters of Chris and Hugh Hempel, had passed their first and second birthdays as seemingly normal and healthy girls until a terrible flu brought them to a doctor’s office. Multiple tests and frustrating dead ends revealed the horrific truth: The twins suffered from an extremely rare and fatal cholesterol-metabolism disorder called Niemann-Pick disease type C, which afflicts fewer than 500 children worldwide. Such a small potential market had little chance of attracting the attention of the trillion-dollar pharmaceutical industry and the army of public and private scientists and clinicians whose work normally makes miracle treatments and cures happen. If the Hempels wanted their girls to live, they’d have to do some of the science themselves.</p>
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