Navigating the heart: A personal journey with hypertrophic cardiomyopathy, rising diagnoses, and the promise of gene therapy

Hypertrophic Cardiomyopathy is a genetic disorder that causes the heart muscle to become abnormally thick, making it harder for the heart to pump blood. The symptoms can vary, or in some cases, remain entirely asymptomatic. It often goes undetected but, in my case, despite the early diagnosis of my father, the journey took an unexpected turn, and my family lost him 10 years as we faced the harsh reality of the limited treatment options for HCM. There was an agonizing lack of effective treatments that could have altered the course of my father’s battle with HCM. Being powerless in the face of insufficient treatment options intensified my family’s grief. After my father’s demise, I recall consulting different cardiologists with his medical records to confirm if we had tried every option. The grief and the inability to help my father was driving me crazy. The frustration of witnessing my father’s health deteriorate despite being aware of the condition highlighted the urgent need for advancements in medical science, specifically tailored to address the complexities of Hypertrophic Cardiomyopathy. <a href="https://medium.com/@reshma.kapatrala/navigating-the-heart-a-personal-journey-with-hypertrophic-cardiomyopathy-rising-diagnoses-and-739d53813e47">Click Here</a>