Faking It: When Everyone’s an Expert
<p>I am a perfect storm of diagnoses that people just don’t believe. I have fibromyalgia and ME/CFS due to long COVID. I am not your classical “perfectly healthy until COVID hit” story: I also have mobility issues due to a seven year old spinal fracture with slow spinal fluid leak. I use a wheelchair when I need to. Note that this is not all the time. I am also an opioid patient (see slow painful spinal fluid leak). You can bet that that comes with a lot of suspicion.</p>
<p>I am fortunate: my doctors take me seriously. I have heard plenty of stories of people fighting for recognition with their medical professionals, from “fibromyalgia is just what we diagnose you with when we can’t figure out what’s wrong with you” to “long COVID is a government conspiracy”. That is a special ring of medical hell and I don’t wish it on anyone.</p>
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